Category: news

Meet Dr. Thor Halfdanarson at our November 13th Meeting

Join us for our regularly scheduled support group meeting on November 13th and meet Dr. Thor Halfdanarson. This meeting takes place three days after NET Cancer Day and is our last for 2016. Dr. Thor will be giving an overview presentation…

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Lexicon announces publication of Telestar study results for Carcinoid Syndrome

NEWS RELEASE FOR IMMEDIATE RELEASE LEXICON ANNOUNCES PUBLICATION OF TELESTAR STUDY RESULTS FOR TELOTRISTAT ETHYL IN THE JOURNAL OF CLINICAL ONCOLOGY Results from Pivotal Phase 3 Clinical Study of Telotristat Ethyl Show Clinical Benefit in Patients with Carcinoid Syndrome The…

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Q & A About the NETest

Dr. Liu, one of our esteemed NET specialists in the U.S. has a Facebook page where he offers a Question and Answer session once a month. This month, he featured guest Nancy Teixeira, a registered RN who works with Wren…

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Buyer Beware: Surprise Medical Bills

An investigative report from KARE-11 explains how even if you do your research picking an insurance policy, your doctors, clinics and other medical team members may not be in your network or can drop out of the network without your…

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National NET Patient Conference – 2016

The National NET Patient conference will be held Sept 22- 24th in New Orleans. There will be over 20 of the top specialist from around the country flying in to speak at the event. This is a 2-1/2 day event. Come join…

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NOLA to offer Gallium 68 Scan Study

NEW ORLEANS – Ochsner Medical Center – Kenner and the New Orleans Neuroendocrine Tumor Specialists (NOLANETS) have launched the Gallium 68 Scan Study to test the effectiveness of this diagnostic tool to detect neuroendocrine tumors. Ochsner – Kenner is the…

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Ipsen representative to present at May 15th support meeting

Northwoods NETS is pleased to announce that Ann Collins-Hattery (RN, MS, AOCN, ARNP), a Clinical Nurse Educator, on behalf of Ipsen Pharmaceuticals will be presenting the first hour of our regularly scheduled support meeting. If you have ever had any questions about…

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NET Cancer Day in Minnesota | 2015

We are pleased to announce that Governor Dayton has proclaimed November 10, 2015 as NET Cancer Day in the state of Minnesota. This is the fourth year that he has offered his support in raising awareness for rare neuroendocrine cancers….

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PRRT offers longer progression free survival

New results from the NETTER-1 study that compared Sandostatin LAR 60mg versus treatment with the novel peptide receptor radionuclide therapy (PRRT) Lutathera have been made available. These findings, released at the 2015 European Cancer Congress, show that for patients living with…

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Keeping track of your health just got easier!

The Carcinoid Cancer Foundation is pleased to announce that a new unique tool for carcinoid/NETs patients and their caregivers is now available! The Carcinoid NETs self-care tool, powered by Health Storylines™ allows you to track your mood, symptoms, and more,…

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