Day: July 3, 2016

National NET Patient Conference – 2016

The National NET Patient conference will be held Sept 22- 24th in New Orleans. There will be over 20 of the top specialist from around the country flying in to speak at the event. This is a 2-1/2 day event. Come join…

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Carcinoid Syndrome Impact Survey

We are excited to participate in the Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patient lives, while also exploring physicians’ approaches to treating the disease. This survey is groundbreaking in that…

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Part Seven: Ten Weeks before Round Two | PRRT & Me

We stayed in Switzerland for a few days after my first round and that was fine. I didn’t really have any side effects, but, I was tired. The only real thing I noticed is that I was having some acid…

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Part Six: Treatment Day Two & Three | PRRT & Me

Making it through Day One with little to no side effects felt like a massive accomplishment. Neither my roomie or I suffered any ill effects from the amino acids drip prior to the PRRT treatment. Some patients do, some patients…

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